Hospice home care what to expect

Here’s a comprehensive guide on what to expect when starting hospice care at home. When you’re navigating the emotional journey of caring for a loved one with a life-limiting illness, understanding the hospice process can provide comfort and clarity.

Hospice Care at Home: What to Expect

1. Admission Process:

   • Once the necessary paperwork is completed and admission orders are received, your loved one is officially enrolled in hospice care.
   • The hospice team collaborates with the patient’s physician and the hospice physician to discuss medical history, current symptoms, and life expectancy.
   • A chaplain and social worker visit to assess emotional, psychosocial, and spiritual needs, which contribute to the personalized care plan.

2. Individualized Care Plan:

   • Your hospice team consists of professionals such as a physician, nurse, hospice aide, social worker, chaplain, and bereavement manager.
   • They arrive one at a time, following a schedule you’ve agreed upon. Their purpose is to support you and your loved one, not to take over.
   • You remain in control, and the team looks to you for guidance while providing answers and gentle care for the patient.
   • Regular visits by team members are scheduled, ensuring consistent support.

3. Medical Equipment and Medications:

   • Within the first 24 hours, necessary home medical equipment is delivered to your home.
   • Medications related to the life-limiting diagnosis are also delivered.
   • The team ensures that you have the information needed to manage changing symptoms and provides guidance on when to schedule visits or ask questions.

4. Patient-Centered Approach:

   • Your input matters! The hospice team considers all perspectives—from the patient and family to physicians and medical evaluations.
   • The patient’s plan of care is reviewed weekly during team meetings and adjusted based on their condition.
   • You are the expert on your loved one’s needs, and the team relies on your insights to provide the best care possible.

5. Emotional and Spiritual Support:

   • The chaplain and social worker continue to offer emotional and spiritual assessments throughout the care journey.
   • They address psychosocial needs, provide counseling, and ensure that emotional well-being is prioritized.

6. Looking Ahead:

   • As days pass, you’ll find yourselves anticipating each team member’s arrival.
   • Hospice care is about enhancing quality of life, managing symptoms, and providing compassionate support during this challenging time.

Remember, hospice care is a partnership. You’re not alone—the hospice team is there to walk alongside you, offering expertise, compassion, and guidance. If you have any questions or need support, don’t hesitate to reach out to them.